The Vision

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  8. Title 8

To Lobby Government (all levels) for more financial support for childhood cancer research. Only 3-5% of funding for cancer goes to childhood cancer research even though it is one of the fastest growing cancer demographics. Statistics state only three new drugs have been approved for childhood cancer research in the last thirty years. In most cases adult medications are being used on children at lower doses.

The relaxation of restrictions placed upon Researchers and Doctors in Canada to enable them to run clinical trials here in this country. These trials are essential to gaining an understanding about these cancers and how they can best be treated. Too often,  top world research specialists  in Oncology/Hemotology are  Canadian but they need to send their  research data to other countries (USA and Europe) in order to  have clinical trials completed on their research models because they cannot do it here in Canada.

More financial support directed specifically at cancer research start up study’s which would enable Doctor’s to secure further grants for research. Researchers at the grass roots of an idea need funding to run tests and prove that their idea is worth perusing and has merit before applying for research grants. Often though there is no money available to get these test projects going.
Review and overhaul the support policies of the OHIP, the Ontario Drug Benefit Plan and other Provincial/Federal plans that would enable full coverage for the needs of childhood cancer patients, including those with special needs prescribed by a physician to go to any care facility in Canada and for it to be covered by the home Province. This would include all clinical trials available to a child out of their home Province.  
Seek Government assistance through funding and/or tax credits to help support families in childhood cancer and to review their abilities to handle the financial stresses of being in cancer with a child. (Parking, accommodations, food, transportation, etc) Often parents and single parents cannot work while a child is in Cancer Treatment.
Provide more funding for Oncology Physicians and Support Staff for wages, training and education , especially to the Children’s Hospitals located in Cities throughout Canada. As an example, The Childrens Hospital of Eastern Ontario does not have the funding to have a full time Oncologists at the Hospital for overnight/weekend work.   
More funding for education and awareness of cancer types, treatment support as per the World Health Organization.  Co-ordinate with the hospital networks to help better improve systems of sharing data and information on a City, Province, Country and Global scale.
Funding for follow up care and research of data for patients 5,10,20,30 years from first diagnosis as survival rates increase. 
Financial support to CHEO and The Hospital for Sick Children’s Research Programs for ETMR Tumours.
(Dr Donna Johnston and Dr Annie Haung)
Create events and programs to work hand in hand with the CHEO team on 4North so that patients/parents will be provided with an environment of support and care from other Oncology families and volunteers.
Promote awareness with Neurology team and Neuro Oncology teams in Ottawa/Toronto. (ETMR) Bring awareness to the medical teams involved in brain cancer surgery/diagnosis of the ever changing dynamics of brain tumours and to aid in the identification process from Sick Children’s Hospital with future cases as per Dr. Annie Huangm (Specialist ETMR Tumor: Sick Children’s Hospital) 
Come along side of organizations that help support families in Childhood Cancer including Candlelighters, Ronald McDonald House, POGO and others to help promote and fundraise for these charities and to continue to bring awareness to them.